The Journal of Allergy and Clinical Immunology: In Practice
Original ArticleThe Mastocytosis Society Survey on Mast Cell Disorders: Patient Experiences and Perceptions
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This work was primarily conducted through volunteer efforts of The Mastocytosis Society (TMS) Research Committee and Board of Directors, with scientific and medical questions resolved by those with relevant background and expertise. Minimal costs of postage and online survey and database hosting were supported by TMS. The authors obtained no funding for activities related to this report. Grants from TMS not directly related to conducting, analyzing, or reporting of this patient survey were received by C. Akin and M. Castells in the years before the survey and by P. Valent after survey closure. M. Castells, P. Valent, and C. Akin are TMS Medical Advisory Board members.
Conflicts of interest: S. Jennings, N. Russell, and V. Slee have received travel support from The Mastocytosis Society (TMS). M. Castells has received a grant from TMS; has consultant arrangements with Merck, Novartis, and Genentech; and is employed by Brigham and Women's Hospital. P. Valent has received grants from TMS and Novartis, has consultant arrangements with Novartis, and has received a speaker's honorarium from Novartis. C. Akin has consultant arrangements with Novartis and Best Doctors; is employed by Brigham and Women's Hospital; has received grants from TMS; has received travel reimbursement and an honorarium from the Western Society of Allergy; has received travel reimbursement and a waived registration fee from the European Academy of Allergy and Clinical Immunology; has received a waived registration fee from the American Academy of Allergy, Asthma and Immunology; has a patent with the National Institutes of Health for an LAD2 mast cell line; and has received royalties from UpToDate. The rest of the authors declare that they have no relevant conflicts of interest.