Reference centers for epidermolysis bullosa and ichthyosis: an urgent need in spain

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Opinion article

Unidades de referencia para epidermólisis ampollosas e ictiosis

A. Hernández-Martina,g,

Corresponding author

ahernandez_hnj@yahoo.es

Corresponding author.

, R. de Lucasb,g, A. Vicentec,g, E. Baselgad,g, E. Morcillo-Makowe,g, M.I. Arroyo Manzanalf,g, I. Abaituaf,g, A. Torreloa,g

a Departamento de Dermatología, Hospital Infantil del Niño Jesús, Madrid, Spain

b Departamento de Dermatología, Hospital La Paz, Madrid, Spain

c Departamento de Dermatología, Hospital Sant Joan de Deu, Barcelona, Spain

d Departamento de Dermatología, Hospital Santa Creu y Sant Pau, Barcelona, Spain

e Director of DeBRA, Spain

f Enfermera del Centro de Referencia Estatal de Atención a personas con Enfermedades Raras y sus familias, Burgos, Spain

g Instituto de Investigación de Enfermedades Raras. Instituto de Salud Carlos III, Madrid, Spain

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Article information

ISSN: 15782190
Original language: English

DOI:10.1016/j.adengl.2013.04.001

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Year/Month	Html	Pdf	Total
2026 1	154	57	211
2025 12	263	89	352
2025 11	222	53	275
2025 10	241	63	304
2025 9	187	36	223
2025 8	130	28	158
2025 7	152	25	177
2025 6	144	33	177
2025 5	215	53	268
2025 4	278	32	310
2025 3	181	31	212
2025 2	194	44	238
2025 1	134	33	167
2024 12	155	37	192
2024 11	145	66	211
2024 10	117	54	171
2024 9	150	38	188
2024 8	159	68	227
2024 7	108	37	145
2024 6	149	73	222
2024 5	131	41	172
2024 4	121	54	175
2024 3	81	40	121
2024 2	80	36	116
2024 1	87	42	129
2023 12	92	40	132
2023 11	106	40	146
2023 10	104	38	142
2023 9	111	25	136
2023 8	78	29	107
2023 7	97	49	146
2023 6	79	29	108
2023 5	80	21	101
2023 4	46	24	70
2023 3	49	21	70
2023 2	68	25	93
2023 1	50	26	76
2022 12	68	47	115
2022 11	43	31	74
2022 10	34	29	63
2022 9	29	46	75
2022 8	30	38	68
2022 7	34	39	73
2022 6	29	37	66
2022 5	44	38	82
2022 4	52	52	104
2022 3	91	64	155
2022 2	48	54	102
2022 1	69	40	109
2021 12	52	44	96
2021 11	62	53	115
2021 10	67	54	121
2021 9	38	43	81
2021 8	39	30	69
2021 7	40	37	77
2021 6	33	37	70
2021 5	32	35	67
2021 4	66	92	158
2021 3	76	32	108
2021 2	48	32	80
2021 1	44	21	65
2020 12	54	10	64
2020 11	32	20	52
2020 10	26	23	49
2020 9	36	20	56
2020 8	28	26	54
2020 7	35	16	51
2020 6	29	23	52
2020 5	24	27	51
2020 4	39	21	60
2020 3	35	21	56
2020 2	6	6	12
2020 1	4	4	8
2019 12	7	5	12
2019 11	4	2	6
2019 10	0	2	2
2019 9	4	2	6
2019 8	4	3	7
2019 7	8	2	10
2019 6	4	15	19
2019 5	5	34	39
2019 4	2	0	2
2019 3	0	7	7
2019 2	4	0	4
2019 1	1	0	1
2018 12	2	0	2
2018 11	5	0	5
2018 10	1	0	1
2018 9	3	0	3
2018 8	0	1	1
2018 5	0	4	4
2018 4	0	2	2
2018 2	63	8	71
2018 1	50	5	55
2017 12	70	7	77
2017 11	37	4	41
2017 10	26	5	31
2017 9	19	10	29
2017 8	19	8	27
2017 7	22	9	31
2017 6	35	14	49
2017 5	28	9	37
2017 4	32	9	41
2017 3	23	20	43
2017 2	19	6	25
2017 1	26	1	27
2016 12	36	6	42
2016 11	32	6	38
2016 10	47	10	57
2016 9	32	7	39
2016 8	35	10	45
2016 7	39	6	45
2016 6	7	8	15
2016 5	7	10	17
2016 4	6	4	10
2016 3	6	0	6
2016 2	6	1	7
2016 1	8	2	10
2015 12	8	2	10
2015 11	12	2	14
2015 10	8	6	14
2015 9	16	0	16
2015 8	20	3	23
2015 7	52	8	60
2015 6	43	7	50
2015 5	21	8	29
2015 4	21	2	23
2015 3	18	2	20
2015 2	16	1	17
2015 1	13	2	15
2014 12	9	3	12
2014 11	15	4	19
2014 10	20	1	21
2014 9	4	1	5
2014 8	13	5	18
2014 7	14	5	19
2014 6	18	5	23
2014 5	23	8	31
2014 4	16	7	23
2014 3	20	7	27
2014 2	16	4	20
2014 1	17	6	23
2013 12	19	5	24
2013 11	6	5	11
2013 10	3	1	4
2013 9	2	4	6
2013 8	4	6	10
2013 7	6	5	11
2013 6	6	8	14

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